Understanding the Therapeutic Coaching Needs for Mothers of Children with Cerebral Palsy



Published
Understanding the Therapeutic Coaching Needs for Mothers of Children with Cerebral Palsy
Ebtisam Alabdulqader, Katy Stockwell, Kyle Montague, Dan Jackson, Andrew Monk, Lindsay Pennington, Roisin McNaney, Stephen Lindsay, Ling Wu, Patrick Olivier

DIS'22: ACM SIGCHI Conference on Designing Interactive Systems (DIS)
Session: wellbeing & Health

Abstract
Mothers of preschool children with cerebral palsy are often responsible for delivering multiple home therapy programs. Technology could be a way to bridge some of the challenges of home therapy delivery, such as lack of regular contact with professionals and the need for support continuity. We interviewed seven mothers and four speech therapists to explore their challenges, and the types of support they currently receive (or give). Key issues included limitations of existing communication channels between mothers and professionals, the mothers’ social support needs, and the level of commitment required to self-deliver home therapy. Based on findings indicating video sharing as an existing practice among mothers, we conducted three workshops to further investigate how a video-based platform could support home therapy delivery. We conclude with a number of design considerations for such technologies, to improve communication and collaboration between professional therapists, mothers and members of their wider social network.

DOI:: https://doi.org/10.1145/3532106.3533489
WEB:: https://dis.acm.org/2022/

Video Presentations of DIS 2022
Category
Management
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